RamonaCreel.com -- Cuz There's Too Much To Keep In My Head!

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Someone's opinion of you does not have to become your reality. (L. Brown) -- Unless they're giving you a compliment! (Ramona)

Tuesday, June 08, 2010

Please Donate To Find A Cure For IPF

You may or may not know that my mother has just died from a hideous disease called Idiopathic Pulmonary Fibrosis (IPF) -– something causes your lungs to turn into a mass of scar tissue, they harden to the point that you can no longer absorb oxygen, and you suffocate.

The disease can move incredibly quickly – although some people might live 3-5 years after diagnosis, my mother was only diagnosed last year. She had her first "acute exacerbation" (a rapid and unexplained deterioration in the person's condition, one which puts you in the ICU and from which you often don't recover) just a few weeks ago, the second Memorial Day weekend, and she was gone less than a week later. She was healthy as a horse otherwise, and should have lived another 10 more years, if not for this disease.

The "idiopathic" part means that they have no idea why it happens, or what to do to stop it. There is no treatment or cure – caught early, pulmonary therapy might buy you a little more time, but not much. If you have a serious case like my mother, you might receive a lung transplant – but only if you're under the age of 65, and most people are diagnosed between the ages of 50 and 75. At this point, they can't even diagnose IPF until it has seriously and irreparably damaged your lungs. Finding out that you have this disease is essentially a death sentence.

My mother's doctor admitted that for the past 10 years, the medical community has been going in entirely the wrong direction with IPF, presuming that it's an inflammatory auto-immune issue, but it's not. Now they think that there is some link to having had pneumonia in your life, possibly acid reflux might cause you to breathe in small acid droplets, and maybe there's a genetic marker. Certainly smoking and exposure to pollutants doesn't help. And because the disease is relatively rare (200,000 Americans currently suffer from IPF compared to 11 million with cancer and more than a million with HIV), it's all really just guesswork – unlike these more well-known diseases, very little funding is provided for research.

I don't ever want to see another person go through what my mother went through in the past few weeks, and I don't want another family member to have to watch a loved one suffer in this way. So if you could please make a donation to IPF research, I would greatly appreciate it – you can send a donation through paypal to the address ipf_rcreel@yahoo.com but I have also set up a "donate" button that doesn't require you to have a paypal account to give. The service is being held at Adamsville Baptist Church on 6/9 at 11AM, and I'll be staying at my sister's for a while if you need a mailing address for us (505 Waterside Circle / McCalla, AL 35111.) Thank you all.

Posted On: 6/8/2010 10:04:27 AM

Thursday, June 03, 2010

I'm going to be absent for a bit

Those of you who read my blogs know that Matt and I have had a rough year in terms of family issues, and it's clear that things aren't going to calm down for a while now.

In addition to the challenges we've been facing with his parents, my mother has just gone into intensive care because she can't breathe -- this is all related to an incurable respiratory disease (which was diagnosed less than a year ago) that is turning her lungs into a mass of scar tissue. This time last June, she was still working, still running around, still living independently -- and within the last month she has declined so severely that she is on oxygen all the time, can't leave the house, and can hardly walk to the bathroom without it taxing her so badly that her O2 levels drop into a range that is frightening. The doctors have said "could be 3 days, 3 weeks, 3 months." So we are in a holding pattern, waiting to see if she improves (which has happened before and could happen again) or continues to decline. And my only goal is to spend as much time with her as I can -- as much time as she has left.

Needless to say, I am emotionally, mentally, and physically exhausted. With all that is going on, I have simply hit a wall and can not continue on as I was. I've decided that, at least for the time being, I don't have the energy to keep up with the nearly constant stream of blogs, posts, and commentary that you have become accustomed to. This is hard for me to admit, because I firmly believe that I can do anything and everything, all at once. But right now, I need to focus all of my resources on my family. So if you see my website go nearly silent in the next few weeks, that's why. I'm going to continue to take care of my coaching and training clients, but all other activity is pretty much going to cease until things stabilize. I hate doing this, and I hope that you all don't forget about me in the mean time. I'll be back soon, I promise -- and the flood of content will continue. I hope you all understand.

Posted On: 6/3/2010 7:54:13 AM

Friday, April 30, 2010

Photography As A Metaphor For Being In The Moment

For the past couple of years while we've been traveling, I have become a picture-taking fool (please check out my portfolio to see some of my work.) I carry my camera with me absolutely everywhere, and I am always stopping to snap a shot of a flower or bug, an interesting architectural detail or a child playing in the park. And what I love so much about photography is that it allows me to be even more in the moment as I go about my daily life.

Posted On: 4/30/2010 6:00:00 AM

Blog: Weekly Simplicity Reality Check -- Making Life A Little Easier  

Thursday, April 29, 2010

Some Days, I Wish I Worked At 7-Eleven

As I sat here today, trying desperately to be witty and engaging in my latest blog (my poor, tired brain fighting me all the way), I thought about the mixed blessing that is my job. Being self-employed means that I'm not allowed to simply punch a time card and go home. I have to always be creating, producing, doing something different than the day before. And it's exhausting! Some days, I wish that my biggest responsibility involved nothing more challenging than pouring Slurpees!

Posted On: 4/29/2010 2:58:04 PM

Blog: In My Fascist State -- If I Were In Charge Around Here  

Wednesday, April 28, 2010

Why "Why?" Is The Most Important Question You'll Ever Answer As A Parent

This past week, Matt and I visited the Jacksonville Zoo -- full of children, most of them pretty well-behaved (and lots of room to get away from the ones that were being obnoxious!) As we were checking out the black leopard, I felt a small person attempting to shove in front of me. I was initially impressed when his mother pulled him back and told him not to do that again. But then he asked, "Why?" and she said, "Because I told you so" and I just wanted to scream!

Posted On: 4/28/2010 8:31:49 PM

Blog: Life Among The Breeders -- It's A Crazy Kid-Centric World  

Tuesday, April 27, 2010

Chasing Spring Wherever We Go

Matt and I have been down in Florida since the beginning of the year -- while the rest of the country has been buried in snow during one of the coldest and longest winters in ages, we've been enjoying warm weather and sunshine. However, the thermometer is starting to rise above about 85 (and we've actually had to turn on the air a few times.) That's a sure sign that summer is on its way -- so it's time to head north!

Posted On: 4/27/2010 7:26:22 AM

Blog: Living In A Tin Can -- The Full-Time Airstreaming Lifestyle  

Monday, April 26, 2010

Making Coupons And Discounts Pay Off

Coupons, if done correctly, can be a great way to reduce your weekly grocery bill. Unfortunately, very few people manage to take full advantage of all those discounts offered in the Sunday paper. Why is it that, more often than not, your good intentions end up expiring before they can save you the first dime?

Posted On: 4/26/2010 6:00:00 AM

Blog: Who Wants To Get Organized? -- A Little Order, Please  

Friday, April 23, 2010

Frugality Is A Way Of Life, Not A Temporary Quick Fix

There has been a lot of talk in the media about "frugality" since the economic downturn. However, I'm disturbed by the way that magazines and newspapers seem to be treating the idea of saving more and spending less as some sort of a quick-fix, a temporary solution to tide us over until the economy bounces back again. True frugality is a way of life, it's a set of values which influence every spending decision you make.

Posted On: 4/23/2010 8:48:12 AM

Blog: Weekly Simplicity Reality Check -- Making Life A Little Easier  

Thursday, April 22, 2010

The Therapeutic Value Of Crayons

The other evening, Matt and I ate at a casual waterfront restaurant. Nothing fancy -- plastic plates, disposable napkins, and paper tablecloths. The kind of place that provides crayons to keep the little ones occupied. Of course, we don't have children, but I still wanted the crayons -- Matt and I amused ourselves (and the waitress) by decorating our entire tablecloth with original (and mostly abstract) artwork. I haven't done that in ages, and it was the best kind of stress-reliever!

Posted On: 4/22/2010 6:00:00 AM

Blog: In My Fascist State -- If I Were In Charge Around Here  

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